Frequently Asked Questions about the Anaphylaxis Registry:

• How can our clinic/practice report cases to the registry? 
• Which centers take part in the registry? 
• Which anaphylactic reactions are expected to be reported to the registry?
• Is there a minimum age for reporting to the registry?
• Should prior anaphylaxis be reported? 
• Should all of the reactions of a patient be reported? 
• Should only patients be registered whose anaphylactic reactions occurred in a hospital? 
• How will an online report be made? 
• Can a submitted form be changed/corrected? 
• Can previously submitted forms be viewed? 
• Should an allergy assessment take place before a report is submitted?

A login with a password is necessary to make a report. The access data will be sent to the head of the participating center after registration. To register you can contact anaphylaxie-register(at)charite.de.

Clinics specialised in Allergology report cases to the registry.

All severe allergic reactions, i.e., reactions that cover symptoms of the pulmonary tract and/or the cardiovascular system should be reported, regardless of the trigger.

There is no age-limit for reporting to the registry. Every anaphylactic reaction should be reported, regardless of age.

Only reactions which occured within the last 12 months shall be reported.

If a patient repeatedly enters the medical center with serious anaphylactic reactions, then a report should be completed for every reaction, considering that the reactions did not occur longer than 12 months prior.

No. All anaphylactic reactions should be reported, regardless of where they took place. We are, however, not interested in reactions which occur during a provocation test.

After log in; please go to the menu item "Questionnaire -> Questionnaire" to open the questionnaire. After completing the questionnaire it is possible to save the form in two variations:

As an "Open/Incomplete Form" or as a "Completed Form."

The saving of an "Open/Incomplete Form" " is recommended if, for example, the diagnostics are running and not all of the information is already available. Post-editing in this saving-variation is possible for 6 months. After 3 months you will receive an e-mail, reminding you that the case needs to be completed. After another 3 months, the case will automatically be saved as unmodifiable.

If all of the required data are available at the time of submission, the questionnare can be saved as a "Complete Case" by clicking "Finalize questionnaire".

Access to the saved questionnaire is possible under the menu item "Questionnaire". Here you can choose between -> "Open questionnaires" and "Closed questionnaires".

Only open forms can be changed or corrected. However, if mistakes are apparent in "Closed Forms", we ask you to please contact the ANAPHYLAXIE Team (anaphylaxie-register(at)charite.de).

Yes. The viewing of both open and closed forms is possible under the following menu items upon logging in:

Questionnaire – Open Questionnaires

Or,

Questionnaire – Closed Questionnaires

That would be ideal. But because this is not the case very often, you have the option to save the reaction as an open/incomplete questionnaire. When you have received the missing data the questionnaire can be completed and then saved as "closed questionnaire".